Understanding PANDAS: A Fellow Mom’s Guide to Compassion and Awareness

As a mom, a friend, and a member of our community, I know how much we all want the best for our children. When something suddenly disrupts their well-being, it’s heartbreaking, confusing, and overwhelming. One condition that deserves more understanding and compassion is PANDAS — Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections. I feel it’s important to raise awareness about this condition, not just to help affected families, but also to remind us all to show kindness because we never truly know what someone else is going through.


What is PANDAS?

PANDAS is a condition that can turn a family’s world upside down. It happens when a child’s immune system reacts to a common strep infection (like strep throat) in a way that mistakenly targets the brain. This can cause sudden and dramatic changes in behavior, emotions, and physical health.

Imagine a child who is happy and thriving one day and then, almost overnight, starts experiencing things like:

  • Obsessive-compulsive behaviors (OCD)
  • Tics (involuntary movements or sounds)
  • Intense anxiety or mood swings
  • Sleep problems
  • Difficulty focusing or falling behind in school

These changes are not just confusing—they’re devastating for the child and their family.


The Challenge of Getting Answers

One of the hardest parts of PANDAS is figuring out what’s going on. There’s no simple test for it, and because the symptoms can mimic other conditions, families often face delays and frustration before getting a diagnosis.

To diagnose PANDAS, doctors look for:

  1. Sudden onset of symptoms like OCD or tics.
  2. A recent strep infection, confirmed through tests.
  3. Ruling out other possible causes for the symptoms.

As you can imagine, this process can feel like an uphill battle. Families need compassion and support as they navigate this journey.


Finding Hope Through Treatment

The good news is that there are treatments for PANDAS, and many children see significant improvements with the right care. Treatment often includes:

  • Antibiotics to fight the strep infection.
  • Therapies to calm the immune system, like steroids or intravenous immunoglobulin (IVIG).
  • Support for symptoms, such as therapy for OCD or anxiety.

Each child’s journey is different, and it can take time to find what works best. But with patience, persistence, and the right support, families can find relief and hope.


The Impact on Families

PANDAS doesn’t just affect the child; it impacts the whole family. As a mom, I can’t imagine the emotional toll of watching your child struggle with something so sudden and severe. The stress, the sleepless nights, the endless appointments—it’s a lot to handle.

Then there’s the isolation. People might not understand what’s happening, or they might judge the child’s behavior without realizing there’s a medical cause. This is why kindness matters so much. A little understanding can go a long way in easing the burden these families carry.


How We Can Help

Whether you’ve heard of PANDAS before or this is your first time learning about it, there are simple ways we can all make a difference:

  1. Educate yourself: Knowing about PANDAS can help you recognize the signs and support affected families.
  2. Be kind: If you see a child behaving differently, remember that there might be more going on than meets the eye.
  3. Offer support: Small gestures—like dropping off a meal or lending an ear—can mean the world to a family going through this.
  4. Advocate for awareness: Share information about PANDAS in your community and encourage schools and doctors to learn more about it.

A Reminder to Show Compassion

As moms, friends, and neighbors, we all have the power to create a more understanding and supportive community. PANDAS is just one example of the hidden struggles some families face. By raising awareness and showing compassion, we can help ensure no child or parent feels alone in their journey.

To any family navigating PANDAS: You are not alone. There is hope, and there are people who care about what you’re going through. Let’s work together to spread awareness, kindness, and support for all families who need it.

Celebrating New Beginnings: Lessons from 2024

As the year draws to a close, I’ve been reflecting on the many new beginnings it brought. For me, this year was all about stepping into the unfamiliar, taking chances, and learning to embrace change with an open heart.

If you’d asked me a few years ago what I thought about change, I would’ve said I hated it and avoided it at all costs. And by “avoided,” I mean I would’ve run in the opposite direction while yelling, “Nope!” But life has a funny way of teaching us lessons we didn’t know we needed. This year, I’ve come to see change not as something to fear but as a chance to grow, evolve, and occasionally panic a little before remembering that I’m capable.

Starting a new career in real estate has been both exciting and challenging. Introducing myself to clients, learning the ropes in a competitive industry, and balancing work and family was daunting at first. And by “daunting,” I mean I may have had a few internal meltdowns, complete with dramatic hand-wringing and deep sighs. But I’ve realized that the best things come when we step out of our comfort zones.

At home, we’ve celebrated milestones and faced bittersweet moments. My oldest, Francesca, started 4th grade this year, and her intelligence, sass, and fierce independence inspire me daily. Isabelle, my 7-year-old, approaches each day with wonder and a deep curiosity about the world around her. Sebastian, at 3, is my little helper—always eager to lend a hand, whether it’s “helping” with chores or bringing me his favorite toys to play with.

This year also brought heartache as we said goodbye to our beloved dog, Gunner, who had been with us since 2008. Losing him was so hard, but his memory reminds us of unconditional love and the joy pets bring to our lives.

On the brighter side, I’ve loved becoming a homeroom mom for both Francesca and Isabelle. Navigating the dance world with my daughters has been its own adventure—glitter, costumes, and all! Each moment fills me with pride as I watch them grow in something they love.

Through it all, friendships and family have been my greatest source of strength. True friends lift us up, cheer us on, and remind us that it’s okay to not have it all figured out. Their support—whether through a heartfelt conversation, shared laughter, or commiserating over parenting fails—has made this year’s changes feel less overwhelming and so much more meaningful. My family, especially my husband, has been a rock, inspiring me daily with his hard work and dedication. He’s the guy who keeps the ship afloat, even when the water is a little choppy!

This year has taught me that new beginnings aren’t about being perfect. They’re about showing up, doing your best, and trusting the process (and maybe buying some extra coffee). Growth happens in the messy, unpolished moments, and that’s where life’s beauty truly shines.

As we step into a new year, take a moment to celebrate your own new beginnings—big or small, planned or unexpected. They’re all proof that you’re moving forward and growing.

Here’s to the beauty of what’s ahead—and the courage it takes to get there.

What were your favorite new beginnings this year? I’d love to hear your stories. Let’s inspire each other as we grow!